Hurtling down the short but steep slope between a switchback, a sudden sharp stab in my lower back had me yelping. I was ten years old. “Stay on the pathway,” my father shouted. But I kept going , albeit more cautiously. That day, at the Llandudno Hospital, in Wales, the doctor examined the X-ray. “A muscle pull,” he mistakenly declared.
Often, over the next two years, stabs like that waylaid me. Then, in Pretoria, South Africa, my entire tailbone was taken out. Yet afterwards, the ‘pulled muscle’ pains stayed. “You’re making too much of it,” grownups said. I learned to hide it. I did not want to be 'a sissy.' Besides, with my cushion at school, my fellows laughed at me. Embarrassed, I let the evidence of alleviating my pain go. Eventually, in high school sports, the constant variants of pain became ingrained, natural. Besides rugby, cross-country running was worse; pain pounded its way into my neck. Sometimes I'd stop up to throw up in agony.
In 1970, the South African Army Conscription Officer demanded: “Surgery? What rugby teams did you play?” In earshot of my fellow graduands, I could not lie. My truth resulted in a brutal period of training, and call-ups, and intermittent stints of border warfare. I was then into my twenty’s, and full of the Shakespearean vainglory of being too ‘quick in quarrel.’ However, the parade drilling, parachute training, obstacle course training, and jumping from the back of moving trucks had me gritting my teeth, wincing, and sometimes groaning aloud. There were long and lonely nights of standing guard. At times I wept deeply for my pain-filled lot. Up on the border, callup after callup, I could hardly believe that a world beyond my immediacy existed. The persistence of pain, physical pain, was something I was learning to accept, but this psychological pain, how does one overcome that?
Mother had this same disease. Mostly bedridden from her late twenty’s, we’d watched her crumble to the chronic pain. As for me, at last diagnosed with congenital ankylosis spondylitis, (which sounds more serious than ‘spinal degeneration,’) I was absolutely determined not to succumb. Mother had taken many drugs. Father had taken many drinks. I would not follow suit. Besides, boarding school and the army had taught the paradoxical value of fearing consequences; one learned self-discipline. So, no, I did not do drugs. And neither did I get drunk. Nor would I smoke. Life was about living with the gnawing, ever present pain, yet being as active as possible. School rugby tackles were excruciating. Army stints took their toll. So, by 1975, I determined that there would be no more army.
AWOL, I absconded out of Cape Town aboard the S.A. Oranje, and then bicycled my way up Britain, hid in the Orkney Islands, and eventually made my way to Canada. Always, there were varying degrees of pain. In Nakina, Northern Ontario, on a building site in the deep November winter of 1976, a fellow worker heard my back snap “from ten feet away.” Dr. Remus, a specialist in Thunder Bay used bone chips from my hips to fuse my lower vertebrae. I really hoped it would solve my chronic condition.
It was not to be. Things grew worse. Like Shakespeare’s ‘seven ages’ of life, I had at times been ‘the mewling infant,’ feeling overly sorry for myself. In the ‘unwilling schoolboy’ stage, I was impatient, fretful, and angry. As ‘the lover,’ I pretended too much that all was good, and that despite my infirmity, I would make a good catch. And as for being ‘the soldier,’ it had fostered a self-resentment of my physical ‘weakness.’ Then came the result of that Nakina building site accident. I subsequently enrolled at Lakehead University. In a series of body casts and braces, throughout undergraduate studies, it was a long span of agonizing recovery. But at least I was able to walk, unsupported. Thereafter, in those ‘fifth age’ decades of the 1980’s, and 90’s, Calgary saw me working as a teacher, and as a community theatre director, where I hid my unrelenting infirmity as well as I could. A passion for work helped, but some saw me stumble, and gave me sympathy along the way. I became renown for having ‘a bad back.’
In 2003 I foolishly pushed our stalled car out from the carwash. Another severe yelp! I came out of the ineluctable surgery by specialist Dr. Hu, mid 2004, sporting a train-track of titanium rods and 12 screws. The Calgary Board of Education Health Officer asserted, “You’ll be on disability. We doubt that you’ll be able to work, or to walk again.” I looked up at him from my couch, and blurted, ‘Watch me.’
Despite being power-chair reliant, within two years I applied for a vacant post, and spent the next six years teaching drama at Centennial High School. Everything was managed from my chair. I needed a neck-brace too. Since my spine was in constant distress, I resorted occasionally to an aspirin. My muscles required perpetual tensing and relaxing to maintain my core strength. It kept my vertebrae from rubbing constantly atop each other. Too often I would have uncontrollable stabs, particularly with movement, and the students and staff became angels of care and consideration. So too for the members of Calgary Community Theatre, whom I continued to direct in show after show. The magic of being visibly handicapped is that people are altogether more considerate. They open doors. They fetch things for you. And they are even careful not to bump you. But things were not so before I was in a wheelchair. Without a cane, or crutch, people thought I was ‘normal.’ And I wonder just how very many of us bear scars, wounds, and afflictions that others do not see, physical, or psychological. Indeed, we are best off to approach everyone with compassion, always. They too have their story.
In 2011, in my sixth of Shakespeare’s ‘ages,’ I retired to Canada’s west coast, and spent the next three years still reliant on my powerchair. I grew worse and worse with pain. Stabs were very frequent. In 2014, in the Emergency ward of the hospital, the doctor admonished, “You’ve multiple pulmonary embolisms in both lungs. You must move if you want to stay alive.” Prescription for pregabalin in hand, I determined to walk again. Twelve years in a powerchair had been enough.
It took two more years to be free. I increased my steps, slowly, and eventually dispensed with my cane too. Then too, I weaned myself down from nine pills a day to just two, nightly. Pain is a constant. I have learned to minimize it, and to allow for it to give me an intense focus on other things. Escaping it is not an option. It is more about learning to integrate it, like an icon on a computer screen, enlivened if clicked on, but sublimated while focused elsewhere. Moment for moment. Day for day. Nowadays I can manage an hour or so of walking, unsupported, when out.
Now, at seventy-three, I’m at Shakespeare’s ‘seventh age.’ It has been a long haul of assimilating and accommodating the effect of unrelenting pain. Accepting the switchbacks, one moves forward. Resisting the path, pain can become more intense. Along the way, physical as well as psychological, allowing for others to help with their expertise, their medicines, their prayers, and their compassion, has done a great deal to help me. Yet still, cutting the medication down to the bare essential, for me, stays paramount. In the end, in the long, lonely hours of persistent pain, it is up to oneself to deal with it, to surmount it, to minimize it, and to integrate it. Then too, may one’s gratitude for all those who’ve cared and helped along the way, as has mine, help you too. ‘Mind over matter’ is no trite saying. Stay strong!






